Blog

“Someone I Used to Know” BBC Radio 4 book of the week

We have just finished listening to this book on the BBC iPlayer. Someone I Used to Know it is the story of Wendy Mitchell who was diagnosed with early onset dementia aged 58. In the first episode she describes the symptoms she had which prompted her to seek help. It is worth listening to. The more we can understand first hand experiences of people living with dementia the better we will be able to help them live well in our communities. Episode 1 is here

October 31st: Halloween fun

A Halloween themed afternoon. 35 Friends came along to join in the fun. Lots of lovely goodies were donated for sharing, including the biscuits shown, which were made by the daughter of a carer.

There were Halloween quizzes and an opportunity to made a pine cone bat or a rosemary broomstick. It is believed that rosemary wards off evil and helps with memory recall. There was also an opportunity to take part in our Halloween raffle to win one of the carved pumpkins and a few other prizes.

As other events will be happening before we next meet, we also did a gunpowder plot quiz and a Remembrance wordsearch. As usual, we finished with a sing-a-long.

A memorable afternoon.

Thank you to Shrewsbury House for the great decorations in the room. We were lucky they had a party booked immediately after our group, so had decorated the room in advance.

 

 

 

October 17th: The return of Tony

Another wonderful afternoon, with Tony entertaining the group. The group always look forward to him coming. There was plenty of singing and dancing. Ring of Fire was especially popular and we think Tony is considering recruiting the group as his backing band.

We always believe in fulfilling the wishes of Friends, if we are able to. Just before Tony started singing, we were approached by one Friend who asked if they could sing a song to the group that they had been practicing. Although their speech has been affected by dementia, they sang beautifully, had a wonderful voice, and got a huge round of applause from the group. A special moment.

 

 

Carers’ Group: 9th October

This evening 6 carers came along and we had a very full session. We welcomed Cathy to the team and she and Julie supported 1 person while their carer attended the group session.

The issues discussed by the group were:

  • Feedback from the previous session – One carer reported that she had found the previous session really helpful and beneficial. She had been using the tips she had learnt and was coping better. Another carer reported that, as a result of attending the group, he had started talking about things he didn’t know he felt.
  • Self care – The emotional impact of caring can be hard. Self care is vitally important. Carers to recognise it is not selfish to talk about their own needs. You can’t pour from an empty vessel.
  • Deflection – Learning to adapt to situations and use strategies when interacting with the person with dementia. Use distraction techniques.
  • Handling bad days – Try not to make a bad day worse than it is, try to keep calm and on an even keel, be prepared to walk away, if necessary. Even during bad times here will be good, and positive, moments. Use choice power to focus on these and let the bad times go.
  • Music – The group talked about the power of music. A carer reported she had read that the songs we hear between the ages of 15 and 25 are the ones we remember most.

The next Carers’ Group is on Monday 13th November.

We look forward to seeing you next time.

Carers’ Group: 11th September

We were pleased to welcome 4 new members and 1 returning member. All the usual regulars sent their apologies and said they would be back next time.

As we had so many new people we recapped some of the items we had discussed before.

We discussed:

  • Feelings of isolation.
  • Dealing with differences of opinion: who’s reality is “real”,  is the “truth” worth an argument?
  • The impact of a loved one going into care.
  • The black spot analogy – a disease is only one part of a person’s story.
  • The bookcase analogy – the effect of dementia on memory.
  • The need for carers to look after themselves as their first priority.
  • Good reads: info here
  • Carers Toolkit : Understanding the different types of memory, how they are used all the time seamlessly and the impact of breaks in the chains.

After the meeting there was some discussion about:

  • The benefits and downsides to moving home after a diagnosis and the Alzheimer’s Society’s discussion forum “Talking Point”: info here
  • How people with dementia may be affected by noise: info here
  • The possible link between pollution and dementia: info here
  • The Alzheimer’s Society’s information hub: info here

Janet also suggested members consider joining a Mooc / Coursera course. These sites have many types of free courses including one about dementia. *: info here.

As a new feature, where carers are supporting someone remotely and not able to attend our Friendship Group, we are providing copies of our puzzles and quizzes from the previous Friendship Group session so they can do them together.

* We have not yet taken the course on dementia so are unable to provide any comment about it. However it looks interesting.

The next Carers’ Group is on Monday 9th October.

We look forward to seeing you next time.

 

August 22nd: Knitting & Archery

Another lovely afternoon with 28 friends coming along.

Thank you to Angelika, of Dementia Dialogue, who kindly came along to host a knitting session and provided the needles and wool. People had the opportunity to knit a memory purse, to contain a strip of paper with their happy memory written on it. Some lovely purses were made.

Thanks again to Marc (nice shirt!) for once again providing a great archery session, perhaps for the last time, as he hopes to take up a full-time job soon. You’re welcome back anytime, if you have a spare afternoon.

We also had time for a sing-song and some quizzes.

See you next time,

 

Carers’ Group: 14 August

We welcomed 3 new people to the group all supporting their Mum’s following a recent diagnosis, with a total of 6 people attending. Julie and Marie supported 1 person while their carer attended the group session. They had a good time doing archery.

The issues discussed by the group were:

  • The book case analogy
  • Not focusing on the black dot of dementia
  • Emotions and feelings following diagnosis
  • The need for health professionals to recognise and respect that some people with dementia do not like hearing the word dementia and are happier hearing memory problems.
  • Feeling guilty and isolated
  • Where to find help and other groups suitable to take people with dementia – The group were aware of the services of the Alzheimer’s Society but wanted to know what else was on offer. The group suggested The Stables and Age Exchange the latter whom run an event on a Sunday.
  • Persevering to get help and knowing the right people to ask – sometimes initially help may not be offered but by persevering and going back it is possible to get help and support.
  • Carer’s Toolkit – We discussed the benefits and uses of oral history work. It can be a great way for carers to connect with the people they are supporting and enables people with dementia to tell their story in their own words. The oral history can be played back later as a reminder to the person with dementia and for others as a way to get to know more about them.
  • We also talked about the benefits of a rummage box for people with advancing dementia  and the sorts of  things they might contain.

Information on local services

Age Exchange Blackheath offer a broad programme of training and support services for people and their carers living with dementia together with regular training and support for Reminiscence Arts Practitioners and community workers.

Age Exchange, Number 11, Blackheath Village, London SE3 9LA
Email: hello@age-exchange.org.uk for all general inquiries
Telephone: 020 8318 9105
Web site: http://www.age-exchange.org.uk

The Stables SE7 is a facility set up and managed by The Greenwich Carers Centre. The Centre has been operating for 25 years and during that time has supported over 13,000 Adult Carers and more than 400 Young Carers (those aged 8-17 years). Across those 25 years of operation the agency have listened to carers and have created a facility and service that truly represents superior support and value for money.

The Greenwich Carers Centre, The Stables, 76 Hornfair Road, Charlton SE7 7BD
Email: info@greenwichcarerscentre.org
Tel: 0300 300 2233
Web site: https://www.thestablesse7.com/index.php

The Greenwich Community Directory is an online resource offering local residents access to information on social care, health, wellbeing and advice services in the Royal Borough of Greenwich. The integrated directory serves as a single point of information and advice on services to help people to live well in Greenwich.

You may find out about dementia services in Greenwich here

Oral Histories

We all have stories to tell, stories we have lived from the inside out. We give our experiences an order. We organize the memories of our lives into stories.

Oral history listens to these stories and is the collection of living people’s testimony about their own experiences. If we do not collect and preserve those memories, those stories, then one day they will disappear forever. Your stories and the stories of the people around you are unique, valuable treasures for you, your family and your community.

You may find someone is reluctant to start talking initially, but once they get going you may be surprised by what you learn. It’s a great way to spend time and connect with someone.

Introduction to recording an oral history here
Sample questions here