Carers Group: 13/09/21

The group was very busy this evening.

Private funding for a care

A carer is trying to find day care and respite for her mother who she is worried about, because of immigration status. She will pay for private care, but is finding it difficult to find anywhere suitable. Suggestions were: MIND/ Greenwich Carers Centre and Care Homes UK. The Alzheimer’s Society’s Help Line “Talking Point” helps people with dementia all over the world
Another carer wishes she had gone to social services earlier, not private. It is wise to involve social services, but have a short list too. Have a consultations with social services.
Tatiana said, when you speak to social services tell them about the homes you are interested in and ask about your finances, if they fall below the threshold and what happens?

NHS dealing with their backlog

A carer’s step father (aged 85) is going in for a hernia operation tomorrow. It was cancelled before in lockdown. She said he is getting a bit unsteady walking about, but he enjoyed the dancing at Reflections last week!


A familiar member of the Reflections group hadn’t been seen recently by her brother and sister-in-law as they have been on holiday. She has been confused using her microwave, as it has an oven in it – so she cooked a plastic dish and melted the little ring thing that holds the plate. She has to remember the right function! (an interesting conundrum).
She said she won’t complete the attendance allowance form. Janet reminded the carer that they have  LPA so they can complete it. She has it in her head that lots of people are moving and she doesn’t want to be left on her own, so she phoned the council and they said she could move, As her brother has LPA he can phone the council and explain her needs.
She is independent at the moment but on bad days she gets confused. Her brother brings her ready meals. She now has a Fitbit which she is learning to use.

Planning ahead

A carer has been away and her mum was well cared for while she was away. She says mum has had a dip over the last few months. The daughter has been planning ahead for her mum investigating various care homes. She is concerned about the finances when money runs out and what happens between different boroughs. Who picks up the funding? Tatiana said the different boroughs would have to decide. Another carer said quote the care act if boroughs are in disagreement.

Visiting those cared for

A new carer said her father is in Worthing and she has only seen him once. The home has strict restrictions still and are not flexible on visiting her dad. She is finding the restrictions very difficult. 

Another is trying to look after someone in a high dependancy ward. She is able to visit three times a week.


A dad is relatively stable at home at the moment. The family haven’t heard from cardiology team, after a considerable wait. Dad has issues with hygiene – he forgets what he has to do. 

Practical considerations

At an easy stage it helps to try and sort out practical things. The Carers Centre is going to look at the attendance allowance and help to gather up evidence. The carer is finding it distressing as its all seems to be negative.
The group advised her to look for the good, what can be done. Once the form has been filled in it’s done. It will help to make life easier. The wife says the rational and emotional side of doing all the paper work is difficult and hard to do. She is trying to see the funny side of some situations. She gets Fridays to see friends it she needs something else to do.

Another carer remembers having get the points for attendance allowance. Theirs was off the scale! 
He has been to Orkney for 10 days while his wife had a live in carer. She didn’t realise he’d been away. She gets agitated but all is fine. 

The Queen Elizabeth and Lewisham hospitals

Janet informed the group of the Dementia nurse (Kate Hudson) at QE. She’s there Monday – Friday, 8.30–5.30. She will go and see the dementia person if you contact her. 

Also if you need to go to hospital A&E you can dial NHS 111 and they will book an appointment for you. QE and Lewisham.

Next meeting 11th October

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