Carers Group: 8/4/24

Janet’s information pieces:

‘Time to Talk‘ have asked if the group want another session. Janet will contact members.

Janet told the group about the Dementia Platform UK (DPUK). They have secured over £4 million to find effective blood biomarkers for dementia. This work could bring early diagnostic blood tests a step closer. Find out more here. To register your interest they are looking for people to sign up (looking at proteins in the brain)

Member updates

Admiral Nurses

A member had information about Admiral Nurses. Nationally there is a help line and a virtual clinic that people can self refer to. More information on their website here. Locally there are now Admiral nurses working as part of the Oxleas team. They will get involved with people with challenging dementia behaviour and more complicated issues. Referrals are via BLG Mind and the Carers Centre if certain criteria are met. Please do contact these organisations if you are struggling with aspects of dementia behaviour.

Her mum has had a UTI and her daughter was advised that she should go to hospital. The daughter had to consider what her mum would want her to do. Tatiana said that the daughter had taken advice from professionals and that her mum going into hospital would have increased her confusion.

Busy Care Homes

Another member said that three care homes in Bexleyheath are full and have waiting lists. Her mum had a raspy chest, which came on suddenly and the doctor wanted her to go into hospital, but the daughter thought about what had happed before and did not want her to go into hospital so her Mum had oral antibiotics instead with a regular review. Although mum is not fully better, she is quite happy, snappy with her daughter and well enough to be grumpy! Janet said that she was still making decisions and caring. She makes the best decision with the information she is given. The daughter was concerned as to whether she made the right decision. Tatiana pointed out the professionals can overrule the daughter’s decision, if they strongly believe they need to get a person to hospital.

Falls

A dad had a fall in the middle of the night which resulted him being in hospital for two weeks. He was discharged before Christmas, but he can no longer walk on his own and needs people to help him. He has a special bed and other aids, but he has deteriorated. He has physio, who gave him specific things to do, and the carers walk him up and down. Janet explained about the importance of leg strength and gave two Friendship Group members as an example. She also mentioned the sit to stand routine from her online trainer. The dad can be happy and sometimes not. It is an emotional time and it takes its toll.

An interesting read

A member said she is reading Wendy Mitchell’s last book One Last Thing: How to live with the end in mind and is inspired by it. You may see some comments about the book on the Azheimer’s Society website here.